Sibling Caregiving Focus Groups

For those in the New England Area-

Are you caring for a sibling with a developmental disability?

Researchers from University of Massachusetts-Boston’s Gerontology Department and the Institute for Community Inclusion are seeking participants for focus group discussions about the issues surrounding caring for a sibling with a developmental disability, particularly as both siblings age. We are interested in learning about your experience as a sibling caregiver thus far and how this role as caregiver has impacted your life and what it means for your future as you age. In particular, we are interested in learning the challenges and rewards associated with being a sibling caregiver. If we can better understand how siblings are caring for their disabled siblings as they age, we can hope to better support their unmet needs and provide both siblings with the highest quality of life possible in the future. The focus group will take approximately 90 minutes. The other component is completing a short demographic survey at the beginning of the focus group discussion.

In appreciation of your participation in the focus group you will receive a $25 gift card. Focus groups will generally be held in the evenings,

6:30-8pm at the

Institute for Community Inclusion:

20 Park Plaza (13th Fl)

Boston, MA 02116

To help with scheduling, please rank the following dates that would be most convenient for you with 1 being most convenient, 5 being least convenient. If none of them are convenient, please send us a preferred date and time and we will try our best to accommodate your schedule.

1. Tuesday, September 27 ________

2. Thursday, September 29 ________

3. Friday, September 30 ________

4. Tuesday, October 4 ________

5. Thursday, October 6 ________

When we receive a response with your preferred time, we will send you an email confirmation that we received it and another one when the focus group is scheduled.

Please direct all questions to:

Caitlin Coyle, M.S.

UMass-Boston Gerontology Department


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2 Responses to Sibling Caregiving Focus Groups

  1. Pauline BEaudoin says:

    I reside at Sophia’s Place and had put my name to be in the focus group today Nov. 9th and wanted to be part of it but was distracted and did not realize the time passed and I was not able to attend.

    I would like to know if you will be doing other groups in the future.

    My Phone # is 857-203-9220

    • admin says:

      Hi Pauline- we may do more, but not sure at the moment. Will add you to our lists, however. Thanks for inquiring. -John