Katie Arnold is the first Executive Director of the Sibling Leadership Network. Katie has been involved in the Sibling Leadership Network (SLN) since the organization’s inception in 2007 and she has grown in her commitment and leadership of the SLN over the years in various roles. Throughout the years, Katie has played a key role in planning numerous SLN meetings and conferences and she has presented throughout the country on the importance of siblings and the SLN. As Executive Director, Katie’s focus is on growing the network of members and the capacity of the organization. At the state level, Katie has been involved in the leadership of the Illinois state sibling chapter, Supporting Illinois Brothers and Sisters-SIBS.
Katie grew up in New Jersey as the second oldest of four siblings with disabilities, including her sister, Patrice, who has developmental disabilities. Katie’s sibling experience has shaped her worldview in many ways. After graduating from the University of Chicago, Katie lived at L’Arche Chicago, a community based on mutual relationships where people with and without developmental disabilities live together. She received her Masters in Disability and Human Development at the University of Illinois at Chicago. She works as the Director of Community Education in the Institute on Disability and Human Development where she provides education and training on various topics which include enhancing the direct support workforce, self-directed supports, supporting healthy relationships and sexuality for people with disabilities, family future planning, and the sibling experience. Katie has received numerous awards, including UIC’s 2009 Humanitarian of the Year award for her dedication to the advancement of human rights of people with disabilities, the 2011 Chicago Young Nonprofit Professional of the Year, and the 2013 National Leadership award from The Arc of Illinois. Katie’s passion for her work stems from her experience growing up with her siblings with disabilities. Katie lives in Chicago with her husband, Gary, who is also a disability advocate.
BOARD OF DIRECTORS
David Horton is a sibling who has a disability and is an advocate for strengthening supports for families who have siblings with disabilities. He is a doctoral student in the Family Therapy Program at TWU in Denton. He received his B.A. in social work from Arkansas State University, Jonesboro, Arkansas and received a M.S.S.W. from the University of Tennessee, Memphis. Upon moving to Texas, he served as Access Housing Specialist for two years with AmeriCorps VISTA/Easter Seals North Texas and as the Board President of the Arc of Denton County. He is presently TWU liaison to the Arc of Denton County. He currently sits on the board of the Arc of Texas and on a subcommittee of the Arc of the United States. His primary research interest and focus of his future practice lie with the behavioral/psychological characteristics of siblings of children with disabilities and the perceptions of parents/children regarding sibling relationships.
Edward O’Neill is a Special Education consultant supporting students with
significant social, emotional and behavioral needs across the spectrum of
disabilities. He has been a Teacher and administrator over programs for
students with disabilities. In his current role, he travels around the
country working with school districts to build programs, train educational
and community personnel, and develop systems to create better outcomes for children with social, emotional and behavioral needs. He is also a professor with the SELECT Program at Northern Arizona
University and teaches graduate courses in Special Education. Edward has
been working through the guardianship process and advocating for his older
sister Jacquelyn who has Down Syndrome to increase her access to meaningful
Sara Hansen, Ed.D., CED, Assistant Professor of Pediatrics, has an educational background including a minor in Communication Sciences and Disorders, graduate degrees in Special Education and Curriculum & Instruction from The University of South Dakota (USD), as well as a national certification in Deaf Education (CED) through The University of Nebraska-Lincoln. Her professional experience includes 11 years of service at the South Dakota School for the Deaf (SDSD) prior to joining the Sanford School of Medicine/University of South Dakota Center for Disabilities in October of 2014. Dr. Hansen has served individuals with a wide range of disabilities from birth through adulthood while specializing in evaluation and plan development. She also has served on teams specifically tailored to assist persons with Autism Spectrum Disorders, Fetal Alcohol Spectrum Disorders, and Deafness. Sara’s passion and dedication to the areas of disability and diversity stems from her role as a sibling. Sara is the second of five siblings. Her brother, Ted, who is third of the five siblings, has multiple disabilities due to contracting a serious illness as an infant. Sara lives in South Dakota with her husband and their children.
Emily Holl’s experience with the Sibling Leadership Network began in 2006, when the network was a dream discussed by a handful of siblings sitting in a circle in an otherwise empty hotel conference room.
Over the next few years, as the dream of a national sibling organization grew into the Sibling Leadership Network, Emily served as the New York representative while working with siblings locally to establish sibsNY, the state’s chapter of the SLN. She also served as Communications Committee Chair of the SLN.
Emily, who has an older brother with intellectual and developmental disabilities, has worked in the disabilities field since 2003. She has experience as a communications professional and as a licensed Social Worker. Emily has conducted research and published on sibling issues, and she had the pleasure of working with Don Meyer and several SLN authors in co-editing “The Sibling Survival Guide.”
In 2015, Emily and her family moved from New York to Minnesota, where she currently supports students with disabilities at a community and technical college. She is thrilled to reconnect with the SLN and to offer her support as Secretary.
Jaime McGeady is a born and raised Jersey Girl who lives in New Brunswick, NJ. She has been working in the field of disabilities since she was a teenager. Currently, she works as a Community Supports Educator at the Boggs Center on Developmental Disabilities, New Jersey’s University Center for Excellence in Developmental Disabilities, which is truly a dream job for her! Her sister has Fetal Alcohol Syndrome and her brother has Cerebral Palsy. She has been an active part of both of their lives since a young age; attending IEP meetings starting at fourteen years old! Her experience as a sibling has really shaped her career and her world view. Jaime feels that all people, including people with disabilities, should be active and fully included members of their community. Through her career and her everyday life, she works towards educating others on this philosophy and on Person Centered language and approaches to supporting people with disabilities. In her free time Jaime enjoys anything outdoors that keeps her active and a good movie; with comedy and historical films being her favorite genres.
Meghan is the oldest of five siblings including a brother, Ryan, who has Down syndrome. Currently, she is a post doctoral fellow in the Department of Disability and Human Development at the University of Illinois at Chicago. She received her Master’s degree and PhD in Special Education from Vanderbilt University. Her research interests include family-school partnerships, disability policy, and families of individuals with disabilities. Previously, Meghan was a preschool teacher for students with disabilities. Meghan has published several articles about siblings of individuals with disabilities. While at Vanderbilt, Meghan co-facilitated sibling workshops for children and teens. Meghan was also a member of the Tennessee Adult Brothers and Sisters Conference Committee as well as the Adult Sibling Research workgroup.
Co-Chair of Research
Caya (Chun-Yu) Chiu
Caya (Chun-Yu) initially pursued special education because she has a brother with significant intellectual and physical disabilities. Knowing that building family capacity can improve individual and family outcomes, she decided to move from Taiwan to the U.S. to advance her knowledge and research skills in the areas of special education, families, and public policy. She received her Master’s from Vanderbilt University and just earned her Ph.D. from University of Kansas.
Support and Information Co-Chair
Jennifer Doyle holds a B.S. in Psychology from Virginia Tech University and an M.S. in Health Systems Management from George Mason University. Jennifer’s younger brother Michael has intellectual and developmental disabilities which prompted her to become and advocate not only for him, but for other siblings as well. She has participated in numerous sibling panels, and enjoys listening to the stories and unique perspective of others as well as sharing her own. Jennifer is a healthcare consultant, focusing on healthcare and policy issues that affect the aging and disabled populations. She also enjoys spending the day with her “baby” brother every Sunday!
Policy and Advocacy Chair
Rachel Patterson is Chair of the SLN Communications Committee and a member of DC Sibs, the SLN chapter for the Washington, DC metropolitan area. She is currently the Director of Public Policy for the Christopher & Dana Reeve Foundation. She studied domestic and disability policy at the Maxwell School of Citizenship and Public Affairs at Syracuse University, and has previously served the disability community at the Association of University Centers on Disabilities and Burton Blatt Institute. Her sister, Amy, has Wolf-Hirschhorn Syndrome – which causes intellectual and developmental disabilities and significant medical needs – and lives in the Seattle area.
Chair of Network Development
Erin Sweeney Hutzelman
Erin Sweeney Hutzelman, M.Ed. is currently a doctoral candidate at the University of Toledo. She also works as a Graduate Assistant there, where she teaches health courses to undergraduate students. Her research interests include: adolescent health, drugs, sexuality, and the health of siblings of individuals with I/DD. Before coming to Toledo, Erin lived and worked in Virginia as a middle school Health and Physical Education teacher. While in Virginia, she received her Masters of Education at George Mason University in Curriculum and Instruction, with a certification in Physical Education. Erin would donate her planning period once a week to go to the special education classroom to teach about health topics. Erin is originally from Pennsylvania, where she earned her Bachelor Degree in Health and Physical Education with a minor in Adapted Physical Activity from Slippery Rock University. She is the middle of three siblings, her older sister has an intellectual disability and her younger brother is a police officer for the city of Pittsburgh, PA.
California Chapter Representative
Julie Payne-Neward is a Chapter Representative on the SLN Board, as well as the President and Co-Founder of the California Chapter of the Sibling Leadership Network. She is the eldest of four siblings spanning 8 years; her next sibling and eldest sister- Natalie Rose, is diagnosed as “Encephalopathy Unknown Origin”. She was born typical, but fell into a coma that left her brain damaged when she was a toddler. Julie has chosen a career in retail real estate as the General Manager of a shopping mall in Northern California and is looking forward to working with the local special needs community on employment efforts. She received her International MBA from the University of San Diego and her BS in Business: International Concentration from Saint Mary’s College in California. She lives in the San Francisco East Bay, a short distance from her mother and sisters, with her husband and toddler daughter who keeps her on her toes!
Colorado Chapter Representative
Emily Shea Tanis
Emily Shea Tanis, PhD is the Associate Director of the Coleman Institute for Cognitive Disabilities and faculty in the Department of Psychiatry at the University of Colorado Anschutz Medical Campus. She also serves as the research coordinator for the State of the States in Developmental Disabilities Project of National Significance funded by the Administration on Intellectual and Developmental Disabilities, which investigates the determinants of public spending for Intellectual and Developmental Disability Services in the United States and contributes to the project of Public Spending and Services for People with Disabilities examining cross-disability public spending in the United States. Tanis has been a co-author The State of the States in Developmental Disabilities Monographsince 2011. Tanis is the sibling of a man with a traumatic brain injury and is past-chair of the National Sibling Leadership Network and co-founder of the Colorado Sibling Leadership Network Chapter. She has published articles on the definition of intellectual disability, the construct of self-determination, the impact of assistive technologies and cognitive accessibility, supports for families of people with intellectual and developmental disabilities, and supported and customized employment. She received her PhD from the University of Kansas, Department of Special Education, MA from Rhode Island College, and BA from Brown University in psychology.
Illinois Chapter Representative
Nora Fox Handler is a committed sister to her three brothers with developmental disabilities, Marty, Patrick, and Michael. Michael also has a serious mental illness. She is a passionate advocate for people with disabilities and their families. She shares the story of her family’s experience and the consequences of their lack of planning for the future. Her story is published in Thicker Than Water: Essays by Adult Siblings of People with Disabilities.
Nora is a founding member and treasurer of Supporting Illinois Brother and Sisters (SIBS) in Illinois and on the Board of Directors of the national Sibling Leadership Network. She also serves on the Advisory Committee of the Sibling Support Project. Nora is an advocate advisor of the Rehabilitation Research and Training Center on Aging with Developmental Disabilities (RRTCADD) and the Institute on Disability and Human Development at the University of Illinois at Chicago. Nora received the Family Advocate award from The Arc of Illinois and is a Board member of The Arc of Illinois.
Members at Large
University of Illinois at Chicago Representative
Tamar Heller, Ph.D. is Professor and Head of the Department of Disability and Human Development, University of Illinois at Chicago and director of its University Center of Excellence in Developmental Disabilities for the State of Illinois. She also directs the Rehabilitation Research and Training Center (RRTC) on Developmental Disabilities and Health, the Advanced Training in Translational and Transformational Research to Improve Outcomes for People with Disabilities grant and is Co-PI of the RRTC on Community Living Disability Policy and the Family Support RTC. Her research focuses on health and long-term services and supports interventions and public policies and their effects on individuals with intellectual and developmental disabilities and their families across the life course. She has over 200 publications including 5 co-authored books.
Sibling Support Project Representative
Don Meyer is the director of the Sibling Support Project. Don is probably best known for creating Sibshops, lively programs just for young brothers and sisters of kids with special needs. Currently, there are over 450 Sibshops in eight countries. Don also created SibKids and SibNet, no-cost listservs for young and adult brothers and sisters which allow hundreds of siblings from around the world to connect with their peers. A sought-after speaker, Don has conducted hundreds of workshops on siblings, fathers, and grandparents of children with special needs and trainings on the Sibshop model throughout the United States, Canada, Ireland, England, Italy, New Zealand, and Japan. Don was a founder of the SEFAM (Supporting Extended Family Members) program at the University of Washington, which pioneered services for fathers, siblings, and grandparents of children with special needs. Don is the senior author or editor of Sibshops, and the children’s books Views from Our Shoes and the Sibling Slam Book. His most recent book is Thicker than Water:essays by adult siblings of people with disabilities.
Self Advocates Becoming Empowered (SABE) Representative
Eric McVay is a board member of the Sibling Leadership Network and a member of Self Advocates Becoming Empowered (SABE), the national self-advocacy organization for people with developmental disabilities. He is also an active member of his state self-advocacy organization in Maine called Speaking Up For Us. Eric is also part of the Consumer Council System of Maine, a voice for consumers of mental health services. He is active in advocacy and knowledgeable about policies that impact people with disabilities. Eric lives in his family home in Maine. He has a close relationship with his younger sister.