Just 2 weeks until the SLN Conference! Reason #2 to be in Pittsburgh on 6/6: Meet the SLN! Learn who we are, what we do and why we want you to join us!

Learn more and register today!

We’re 3 weeks away from the SLN Conference! Reason #3 to be in Pittsburgh on 6/6: Learn about civil rights, self-determination and how to empower ourselves and our siblings!

Learn more and register today!

We’re 4 weeks away from the SLN Conference! Reason #4 to be in Pittsburgh on 6/6: Explore the power of storytelling and share yours!

As an added bonus, you’ll also have the chance to meet our fabulous Executive Director! On April 24th, our very own Katie Arnold received the National Leadership Award from the Arc of Illinois at their convention.

This award is given to a leader that has influenced positive change and whose contributions have significantly impacted the lives of people with intellectual and developmental disabilities.

Come congratulate Katie in person in Pittsburgh … Learn more and register today!

These PSAs are based on the findings from a research study, “Sibling Connections to Employment,” about the involvement of siblings in employment. We hope these short videos, in some small way, motivate siblings of people with disabilities to get involved in the lives and career paths of their brothers and sisters.

The Sibling Leadership Network connects siblings to resources and support. But this video series represents another function of the Sibling Leadership Network: to disseminate research in a way that matters and is motivational to siblings. We think that siblings can benefit from research most when the findings are easy to understand and framed in a practical, real-world kind of way.

If you have not already, please become a member of the Sibling Leadership Network. We have a conference coming up in Pittsburgh on June 6, so we hope to see you there. Also, if you have a burning issue or something you think is important to siblings of people with disabilities, drop us a line at info@siblingleadership.org, or connect with us on Facebook or Twitter.

Sincerely,

Reason #5 to be in Pittsburgh on 6/6: The chance to hear from national experts on the latest in sibling services, supports, research initiatives and advocacy efforts.

Learn more and register today!

Find out more about the Siblings Rule PSA series here…

Find out more about the Siblings Rule PSA series here…

Find out more about the Siblings Rule PSA series here…

Find out more about the Siblings Rule PSA series here…

One Tuesday night this winter, I was babysitting my friends’ children, three-year-old Eliza* and one-year-old Mitchell.*

I watch them on a weekly basis, so I have a working knowledge of their routines and habits. But on that particular Tuesday, Eliza did something I didn’t expect.

When she noticed her brother Mitchell getting a little fussy around bedtime, she stepped closer to him and looked into his eyes. He grew still. Then she stepped away, her hands partially covering her face. And then …

Older sister. (Used with permission.)

“Ah BOO!” Eliza exclaimed, moving her hands away from her face in a ‘ta-da’ motion. Her expression was confident; she knew this would make her brother happy. It was a modified version of peek-a-boo, and Mitchell loved it. His face lit up. His laughter overflowed, bubbling together with hers.

I wish I could play that sound for you; if you heard it, you wouldn’t be able to help but smile too.

In fact, if there’s ever an election wherein we as a human race decide on an official sound for delight, I would vote for this: a baby boy and his toddler sister, laughing together.

The sound of siblings, enjoying life together as only they can.

***

I have one sibling, my brother Willie. He’s two years younger than I am; he’s brilliant, thoughtful, and hilarious. He’s also on the autism spectrum.

Growing up with Willie meant ‘leaving normal.’ It meant knowing that my brother was different from other kids. It meant learning oh-so-early-on how to smooth over the rough waters Willie would leave in his wake.

I’ll be the first to say that sibling relationships aren’t always easy. Here in the grown-up world, it’s not always peek-a-boo fun and games. Far from it. Being Willie’s sister has meant laughter and love, yes, but it’s also meant pain and loss.

I was there when Willie was diagnosed. In fact, it’s my first memory: playing on the jungle gym in the waiting area of the diagnostic center. Waiting for my mother to return. Her holding me; me not knowing why she had tears in her eyes.

I was there when Willie ran away from home as a little boy. I felt the fear of losing him, and the embarrassment of having the police pull him out of the local duck pond.

And I was there when Willie had violent meltdowns as a young adult; he still struggles to control his behavior. I was there when my only brother became a stranger to me.

***

Baby brother. (Used with permission.)

And young as they are, Eliza and Mitchell aren’t exempt from all this. They may not have to face the challenges of autism, but they will have ugly moments. They will fight. They will resent one another, if only for a time. Even if they love each other, they will probably say, “I hate you,” at least once.

So the question isn’t whether or not they’ll have those moments; they are human, so of course they will. The real question is: what will they do afterward?

Will they forgive? Will they apologize? Will they choose love and acceptance, even when bitterness tempts them?

Will they remember the power of shared laughter, the deep-down connection they’ll always have?

I hope so. Because for all the difficulties that have come with being Willie’s sister, I wouldn’t trade it. Not a chance.

***

Even though we’re all grown up, I still know how to make my brother laugh. Willie loves wordplay, and he’s thrilled whenever I put the ‘wrong’ word into the ‘right’ phrase. “I’ve been dreaming of a wish come … clear!” I say, and he’ll crack up.

And I know the best way to get his authentic smile on camera: I reach over and tickle him just before I snap an arms-length photograph. I know these things, and many more.

There’s so much that we don’t know about autism; so much of my brother’s mind is a mystery. And maybe that’s why I cherish ‘ordinary’ moments with Willie. Maybe that’s part of what makes talking on the phone, going for walks, and playing ping pong together so special.

And perhaps that’s why I had to turn away from Eliza and Mitchell as they played peek-a-boo that night. Maybe that’s why I had to wipe happy tears from my eyes.

I didn’t mean to cry, but I couldn’t help it. If you’d been there, I think you would have done the same. And it wasn’t just the sweetness of peek-a-boo, or the unexpected surprise of seeing Eliza comfort her brother.

The sound of their laughter moved me, quite simply, because it was all too familiar.

***

Caroline McGraw is a would-be childhood paleontologist turned storyteller, digging for treasure in people with autism and intellectual disabilities (and empowering caregivers to do the same). A former L’Arche Program Director, she blogs at A Wish Come Clear and works as a copywriter for organizations with a special needs support focus.

Her most recent book, a Kindle Single entitled, I Was a Stranger to Beauty (ThinkPiece Publishing, 2013), debuted at #3 in Special Needs Memoirs on Amazon; it focuses on her journey toward accepting Willie as he is. An honors graduate of Vassar College, Caroline lives and works in Alabama with her husband.

 ***

Are you a sibling? Celebrate National Siblings Day (April 10, 2013) by posting a photo of you and your sib on The Sibling Leadership Network’s Facebook page!

*Names have been changed.