Support & Info Committee and Resources

The SLN Support & Info Committee works to increase awareness of services and supports for siblings of people with disabilities across the Lifespan. The Support & Information Committee is responsible for:

  • Advocating for increased and enhanced services and supports for siblings of people with disabilities, especially in regards to the discrepancies between states and their service systems
  • Compiling and disseminating information on current services and supports that include and target siblings
  • Managing services and supports content on SLN website

Supporting brothers and sisters can be an effective way to improve life for people with disabilities. For a more detailed explanation of this process, download the  SLN White Paper.

The SLN is dedicated in part to providing resources, forming communities, and creating connections among siblings and sibling supporters across the lifespan.

Here you will find resources listed by age group:

Young sibs

Teen/Young Adult sibs

Adult sibs

Click here for Cuyahoga County Board of Developmental Disabilities Interview questions.

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Consumer Voice Clearinghouse

The National Consumer Voice for Quality Long-Term Care has developed a clearinghouse for long-term care information geared toward promoting effective advocacy of consumer-directed care. The Clearinghouse is a one-stop-shop of information that includes a variety of types of resources such as best practices and fact sheets, reports and briefs, state and federal legislation, presentations, research and statistics, training materials and presentations. These resources cover a wide range of long-term care issues (for example, abuse, consumer’s rights, ombudsman program), particularly for those who wish to advocate for consumers. After registering, the Clearinghouse is free to use and includes nearly 1000 resources from the Consumer Voice and National Long-Term Care Ombudsman Resource Center (NORC) as well as a multitude of resources from other organizations. New resources are also being added every day. Click here to register and start using the Clearinghouse. Click here to watch the video tutorial and learn more about the Clearinghouse.

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 Quality Mall

Quality Mall is a place where you can find lots of free information about person-centered supports for people with intellectual/developmental disabilities. Each of the Mall stores has departments you can look through to learn about positive practices that help people with intellectual/developmental disabilities live, work and participate in our communities and improve the quality of their supports.

Quality Mall Website

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Public Health Corps

Public Health Corps is  “Putting the Public Back in Public Health” by finding and sharing quality health information with those in need.

Their team is comprised of volunteers who are driven to educate and empower others to action, as well as paid experts working to incorporate market research with public health to identify and promote quality content. They hope that the resources we provide will empower others to make a difference in their community and will inform their personal health-related decisions.

Public Health Corps Website

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Useful Websites

State-by-State Help for Family Caregivers

Guide to Housing | Disability.gov

A Guide to Keeping Your Home for the Newly Disabled 

Healthypeople.gov | Disability and Health

Benefits for People with Disabilities

Medicare & Social Security: Benefits for Disabled Individuals

Employment Resources: The National Organization on Disability

Disability.gov’s Guide to Disability Rights Laws

Brain Trauma and Equal Opportunity: What You Need to Know 

Emergency Preparedness for People with Disabilities

Fire Safety and Disabilities Guide

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Moving Out of State With a Person Who Has a Developmental Disability

What happens when you move out of state and bring with you a loved one who has a developmental disability?  More often than not, you lose most, if not all, of the services that make it possible for that person to live a healthy, safe, and quality life in the community.  In most cases, there will be no funding available for group homes, personal care support, adult day training, respite, diapers, or adaptive equipment.  Although most states have home and community based waiver programs, most of these states have very long waiting lists.  It could take years before your loved one receives services.  We interviewed all 50 states about their programs for persons with developmental disabilities

MedicaidWaiver.org

(727) 841-8943

All Fifty States Were Interviewed

We interviewed all 50 states, and asked the same 10 questions:

1)  What Programs Are Available To Assist People With Disabilities in your state? 2)  What number do  you call to start getting services? 3)  Who Qualifies For Assistance?  (disability, age, and financial requirements) 4)  How many people are currently waiting for services, and how many years should they expect to wait?  5) How many people are currently receiving services? 6)  What assistance is available while you wait? 7)  Does the state offer group homes and supported living? 8)  Are there still state owned institutions? How many people are living in institutions 9)  Do you have choice in providers?    10) What is the process to become a provider?

learn more

To advertise on MedicaidWaiver.org call (727) 841-8941.  All listings include a free one page website while you advertise.

Do you have an interesting fact about Illinois’s waiver program?  We are always updating our website.  Write to AaronNangle@MedicaidWaiver.org with your suggestions.  Be sure to put “Illinois” in the subject line.  We cover all 50 states!

We encourage you to explore all of the resources here.