Parents/Family Members

Online resources for parents and family members:

sibling support projectSibparent: A place where parents of kids with special needs can talk about their “other” kids.

On the Internet, there are hundreds of listservs where parents can talk about their kids who have special needs.  But there is only one listserv where parents can go to talk about their “other” kids!  SibParent, sponsored by the Sibling Support Project, is a new, innovative listserv where parents can discuss the joys and concerns experienced by their typically developing children.

As many SibParent participants are also parents of kids who attend Sibshops, SibParent is also a forum for parents who want to support the Sibshop movement.  (And in case Sibshops are new to you, they’re lively peer support and education programs for school-age sibs.  You can find much information about Sibshops at www.siblingsupport.org !)

Like the Sibling Support Project’s other listservs, SibParent is a warm, thoughtful community.  If you’re a parent who’s concerned about the well being of all your kids, we hope you’ll join us!

SibParent is hosted by Andrea Congdon, a mom of children with and without special needs and a Sibshop provider and enthusiast.

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Asperger’s Sibling Support: 15 Practical Tips for Parents/Caregivers This handbook provides parents/caregivers with viable strategies for supporting Asperger’s siblings (the often-overlooked piece in the Autism Spectrum Disorder (ASD) support puzzle). 

better bookBy collaborating  on this handbook with a professional psychologist, the author was able to leverage the insight she learned from years of counseling about her lifelong relationship with her own brother. The success of the collaboration is evident here — you’ll find an accurate understanding and explanation of Asperger’s sibling dynamics. In step-by-step format, the author provides straightforward information for helping Asperger’s siblings deal with day-to-day challenges such as explaining Asperger’s behavior to others, understanding lopsided household rules, feeling loved and respected as an individual outside of their role as an Asperger’s sibling, and comprehending the unique advantages of living in an Asperger’s family. This is an important resource for anyone wanting to understand and support ASD siblings.

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The Waisman Center, located at the University of Wisconsin-Madison, has developed a disability awareness Spanish language radio novela. The Chavez family story is told over 13 episodes and begins with Ana’s diagnosis with cerebral palsy through her first job as a young adult. It provides an entertaining and educational insight into the experience of families, siblings and children with disabilities and community members as they move through the different settings and life cycle events of Ana and her family. You can download all 13 episodes, with full English and Spanish language transcripts.

Find all the episodes, with Spanish and English transcripts, here. Episode 6 is specifically for and about siblings!

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Don Meyer’s Sibling Support Project has collected input from siblings on What Siblings Would Like Parents and Service Providers to Know. This is a must read, no matter where you are coming from!

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Cerebral Palsy Guide provides educational information, financial options and emotional support for parents and children impacted by cerebral palsy.