Self Advocacy Resources

 Online Resources for supporting Self-Advocates:

The National Gateway for Self-Determination

The National Gateway to Self-Determination is a consortium of five primary University Center on Excellence in Developmental Disabilities (UCEDDs) and the Association of University Centers on Disability (AUCD).

The overarching goal of the NGSD is to assist in reducing the gap that exists between the promise and reality of efforts to promote self-determination by the adoption of a social-ecological model for evaluating and dissemination information about promising and evidence-based methods, materials, and strategies that promote self-determination and improve the quality of life for people with intellectual and developmental disabilitites throughout the lifespan.

Check out SLN Executive Director Katie Arnold’s article in the first issue of the NGSD “From Research to Practice.”  Her article starts on page 14, and check out the rest of the issues for lots of great information!

Self-advocate Tia Nelis has provided an accessible explanation for Katie’s article. watch it here:


Riot-Issue-34-Title-CoverThe Riot! offers a newsletter for self-advocates, and their “Sibling Corner” column is written by SLN members and their siblings. The SLN’s Executive Director, Katie Arnold, and her sister Patrice were asked to contribute to the most recent issue. Check the latest issue out here, and don’t miss Katie and Patrice’s “Recipe for Supportive Siblings,” on page 6!



The SLN is a contributor to the Self-Advocacy Curriculum from Autism NOW, the National Autism Resource and Information Center, and the Autistic Self Advocacy Network created a tool that is intended to help individuals with autism and other developmental disabilities learn more about the self-advocacy movement, celebrate neurodiversity, cultivate local self-advocacy groups, and ultimately, become and remain empowered through self-advocacy.

Check out pages 4 and 40 for the SLN’s contributions, written by John Kramer!



Self Advocacy Groups:

Self Advocates Becoming Empowered (SABE) is a national self-advocacy organization for people with developmental disabilities in the United States. Founded in 1990, SABE has been working hard for the full inclusion of people with developmental disabilities in the community throughout the 50 states and the world.

SLN is pleased to have two SABE representatives on our Board of Directors to ensure we have a strong partnership between our organizations.

Read the SABE Spring 2014 Newsletter here.  SLN Executive Director, Katie Arnold, has a great article on “Siblings Can Support Each Other To Vote” on page 3. Also, page 4 and 5 describes the great work SABE has done for the Southern Collaborative Regional Self Advocacy Technical Assistance grant project called Our Community Standing Strong.  SLN is proud to be an Ally Advisory Committee member of this project and Emma Shouse represented the SLN at the Tennessee meeting.

Autistic Self Advocacy Network (ASAN) is a 501(c)(3) nonprofit organization run by and for Autistic people. ASAN’s supporters include Autistic adults and youth, cross-disability advocates, and non-autistic family members, professionals, educators and friends. ASAN was created to provide support and services to individuals on the autism spectrum while working to educate communities and improve public perceptions of autism. Our activities include public policy advocacy, community engagement to encourage inclusion and respect for neurodiversity, quality of life oriented research, and the development of Autistic cultural activities. We provide information about autism to the public through a number of different educational, outreach and systems change related projects.

ASAN has released a helpful resource on supported decision-making. Learn more and access the resource.

Allies in Self Advocacy is a resource to learn what each state was doing around self-advocacy, help each state develop and present a state plan to strengthen their activities around this area, and develop national policy recommendations for AIDD and its partnering organizations. Overall, the purpose was to strengthen and enhance self-advocacy efforts in the states and nationally. The Administration on Intellectual and Developmental Disabilities (AIDD) funded self-advocacy summit and leadership gatherings of self-advocates and partners to gather information around self-advocacy activities and policies in each of the 56 U.S. states and territories. Progress has continued beyond the summits, and all are welcome to join the ongoing efforts and conversations.

Resource for Self-Advocates: How to Speak Up and Be Heard


Grant Toolkits

Accessibility Toolkit for Funders Who Support Self-Advocacy Organizations

Self Advocate Grantwriting Toolkit

Our Community Standing Strong-Southern Collaborative Speaks

Our Community Standing Strong, Self Advocates Becoming Empowered Regional Self Advocacy Technical Assistance Center is excited to release a video blog series on issues of concern in the southern collaborative states participating in project. The Sibling Leadership Network is an Allie member of this Advisory Committee.