Resources for Adult Siblings: Future Planning

The Arc’s Center for Future Planning

There are 600,000-700,000 families in the United States in which an adult with an intellectual or developmental disability (I/DD) is living with aging family members and there is no plan for the individual’s future. The Arc has created the Center for Future Planning to support and encourage adults with intellectual and developmental disabilities (I/DD) and their families to plan for the future. The Center’s website ( is the first step in achieving that goal.

The website provides reliable information and practical assistance to families and individuals with I/DD on areas such as person-centered planning, decision-making, housing options, financial planning, establishing daily activities, and making social connections. In addition, the website provides information to family members, friends, and professionals that support individuals with I/DD. The website also features stories of people and families who have created future plans or who are in the planning process.

The Center also offers webinars to chapters of The Arc and other professionals who support people with I/DD to help them learn how to assist families in the future planning process. If you know of a group in your own community that would be interested in these trainings, please encourage them to visit to spread the word!

Please contact to learn more about the Center’s plans to develop more resources and training opportunities.

Charting the LifeCourse

“Charting the LifeCourse is designed to be used for your own life, for your family members, or in the work you do. The framework and tools will help you organize your ideas, vision, and goals, as well as problem-solve, navigate, and advocate for supports.”


Sibling Strengths and Supported Decision Making: Updates on Sibling Research

This presentation shares research related to siblings of people with disabilities. The focus is on sibling strengths and supported decision making.


“The Future is Now” Curriculum

This curriculum equips families and their adult relative with a disability with the communication skills and information to jointly plan for the future.

Participants learn how to overcome the emotional and systematic barriers to planning with the support of peer mentors who have made plans. They prepare a letter of intent that lays out their dreams for the future and identifies the steps required to transform this dream into a reality. This state-of-the-art approach to future planning was developed, implemented and evaluated by the RRTCADD. It is an excellent resource for agencies, family organizations and advocacy groups. The Future is Now received a National Alliance for Caregiving 2008 innovative program award. The revised third edition broadens the training’s focus to include adult siblings without disabilities in the planning process and contains an updated and expanded resource list. It comes with a CD-ROM so that users can easily replicate copies of handouts for class exercises and homework assignments, English and Spanish versions of the letter of intent, and assessment tools.

COST PER UNIT: $80.00 (Softcover) + Shipping

To order, contact the RRTCADD.

Adult Sibling Toolkit

The National Down Syndrome Congress created an Adult Sibling Toolkit that can be access in both English and Spanish.

Future Planning for Siblings of Individuals with Disabilities An overview by the SLN (Planificación Futura Para Hermanos/As De Personas Con Discapacidades)

SiblingResources Webinar & SibChat on Future Planning.

Starting the Conversation: Future Planning and Siblings of People with IDD

SLN’s Exectutive Director Katie Arnold & SLN Member Tamar Heller lay out an overview of what Future Planning is and where siblings can get started.

Siblings with a Mission Fall Virtual Event 2020: Planning for the Future

Recursos de Planificación Futura de The Arc