Article Spotlight: “The Mistake We Made When Planning for the Future of My Sister With Down Syndrome”

January 30, 2019

Phillip Clark reminds readers that when planning for the futures of siblings with disabilities, it’s absolutely crucial to include your sibling in the conversation: “We had the best intentions. We strived to create a great future for my younger sister, Sarah, who has Down syndrome, no matter what future events would transpire. For weeks, we spent many…

Resource Spotlight: My Health Passport

January 28, 2019

The Florida Center for Inclusive Communities offers a helpful, free resource called “My Health Passport,” which people with disabilities can fill out with assistance if needed and then share with health care professionals to inform them of their health care needs. Click here to download the resource.

Research Participation Opportunity: Siblings of individuals with disabilities, please share your perspective through this online survey!

January 23, 2019

Study about Siblings of Individuals with Disabilities We are conducting a survey about the experiences of siblings of individuals with disabilities. By taking this survey, you can help us learn more about needed supports for siblings of individuals with disabilities. This online survey will take no more than 20-30 minutes to complete. You are eligible…

Resource Spotlight: Videos Provide Insight into Family Support and Sibling Perspectives

January 16, 2019

Please check out these great videos that were supported through the Family Support Resource and Training Center (FSRTC) www.fsrtc.ahslabs.uic.edu Family Supports: Voices of People with Disabilities Improving Family Support: Ideas from People with Disabilities Gaining Insights: Amira’s Story Liz’s Sibling Stance

Upcoming Webinar – End of Life: Issues and Resources for People with Intellectual Disability and Caregivers

January 10, 2019

End of Life: Issues and Resources for People with Intellectual Disability and Caregivers Wednesday, January 23, 2019, 4:00-5:00pm ET “Think about not being told that a close family member has died. Picture not being invited to the funeral. Then imagine that no one will talk to you about the death or explain what happened. Sadly,…

Special Olympics Seeks Sibling Engagement Fellow

January 9, 2019

Job opportunity: Through a new and developing Siblings program, the Sibling Engagement Fellow will have an opportunity to engage siblings in the Special Olympics movement in an unprecedented way. Click here for more information about the position and to apply.

Intelligent Lives: A New Documentary About Three Pioneering Young Adults with Intellectual Disabilities

January 8, 2019

“From award-winning filmmaker Dan Habib comes INTELLIGENT LIVES, a catalyst to transform the label of intellectual disability from a life sentence of isolation into a life of possibility for the most systematically segregated people in America.” Click here to learn more about the film. Click here to view a list of screenings by state. Click…

A Self-Advocate’s Perspective

January 1, 2019

The SLN asked Liz Weintraub, a self-advocate who works for the Association of University Centers on Disability (AUCD), about her experience with her siblings, and why siblings matter. SLN: Tell us a bit about your family. Liz: I have three sisters, and I am close to all of them. One of them lives close by,…

MASTER WOODY by Ann Talman

January 1, 2019

My parents faced heartbreaking decisions in the early 1950s when choosing what was best for their little boy Woody, born with severe cerebral palsy in 1948. Woody was diagnosed at age two as a non-verbal, spastic quad and his life expectancy was 12. His gifts are mental brilliance and a sweet disposition. At 8 years,…

From Meghan Burke, SLN Research Committee Co-Chair and Assistant Professor of Special Education at University of Illinois, Urbana-Champaign

January 1, 2019

Ryan is my 20 year old brother. He loves broadway plays, movies, television shows, and bowling. Most weekends, we go out to eat at restaurants, get frozen yogurt, and watch movies at my apartment. Ryan also has Down syndrome. Most people focus on what I provide Ryan; however, he has given me so much…

Article Spotlight: “The Mistake We Made When Planning for the Future of My Sister With Down Syndrome”

Resource Spotlight: My Health Passport

Research Participation Opportunity: Siblings of individuals with disabilities, please share your perspective through this online survey!

Resource Spotlight: Videos Provide Insight into Family Support and Sibling Perspectives

Upcoming Webinar – End of Life: Issues and Resources for People with Intellectual Disability and Caregivers

Special Olympics Seeks Sibling Engagement Fellow

Intelligent Lives: A New Documentary About Three Pioneering Young Adults with Intellectual Disabilities

A Self-Advocate’s Perspective

MASTER WOODY by Ann Talman

From Meghan Burke, SLN Research Committee Co-Chair and Assistant Professor of Special Education at University of Illinois, Urbana-Champaign

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