How to be a Sister to air on Spokane Public radio

December 29, 2010

Forwarded from our friend and author Eileen Garvin, “Hello fellow sibs! Just wanted to share a bit of good news: The friendly folks at KPBX FM in my hometown will be airing the audio version of “How to be a Sister: A Love Story With a Twist of Autism” in January. I recorded the book…

A decision for Apple Valley hockey star: Unique family bond, responsibilities shed light on choices

December 17, 2010

Thanks to my friend Paul for sending along this story: “Cooper,” he cooed, squeezing his unresponsive sibling’s frail shoulder before curling up next to him in bed – a tall, broad-chested athlete beside a small, crooked boy. It’s hard to imagine the 6-3, 200-pound Fasching could have had a much different life – one perhaps…

Alan’s Birthday Party

December 15, 2010

From our friend Susan Hamovitch- “Just the facts ma’am. Al and I picked Alan up at his group home in Rockland County 11 ish Sunday morning. It had been a while, I’m chagrined to say, since I’d visited my brother, and a very long time since I”d come by on a Sunday morning. For whatever…

From Me to You — Sibling to Sibling: Talking about the Big Taboo

December 15, 2010

From our friend Kate- “Reader warning: if you are not a sibling or family member of an individual with Developmental Disabilities, stop reading. If you read the word Taboo, and you think “I shouldn’t…” then stop reading. If you see the word SEX and immediately shut your eyes, stop reading. If you are scared of…

Conversation: A Simple Yes/No Will Do

December 12, 2010

I spent a couple days with my brother David. David is pretty much non verbal. He can vocalize. He sure lets you know when he is unhappy. He laughs when he is happy. But, I wondered, instead of happy or unhappy could it be possible that David could answer YES or NO questions? Read the…

Administration on Developmental Disabilities: Envisioning the Future

September 23, 2010

From Sharon Lewis, newly appointed Commissioner, “As the recently appointed Commissioner for the Administration on Developmental Disabilities, public outreach and strategic planning are critically important items on my agenda. There are so many complex issues affecting people with disabilities across the country – implementation of the Affordable Care Act, the new economic reality of states,…

Ashton Kutcher’s twin brother, Michael, who has CP, lobbies Congress for funding for cerebral palsy

September 23, 2010

Until now, Michael Kutcher (pictured) has been known as Ashton Kutcher’s twin brother. But with his visit to the White House and Congress Tuesday on behalf of the Reaching for the Stars foundation, he is hoping to distinguish himself as a voice for people with cerebral palsy. Kutcher, who has cerebral palsy, is an avowed…

Take one and Pass Along. The Arc’s F.I.N.D.S.: Family and Individual Needs for Disability Supports

August 13, 2010

The Sibling Leadership Network is sharing this information with you about an important survey being conducted by the Arc. Please take time to complete the survey, especially to ensure that the sibling perspective is included. Best, Katie Arnold Chair, Sibling Leadership Network www.siblingleadership.org FINDS—A meaningful way to involve individuals with intellectual and…

My Story by Marvin Moss

July 30, 2010

I was born to be an advocate for people with developmental disabilities (DD). I had a brother, born in 1941, with DD. I was born in 1946 also with DD. My mother became a strong advocate for my brother and me. She started parent organizations in Cincinnati, the state of Ohio and was a co-founder…

Monica and David HBO TV Premiere

July 30, 2010

MONICA & DAVID will premiere nationally on Thursday, October 14th on HBO. 8pm ET / 7pm CT

How to be a Sister to air on Spokane Public radio

A decision for Apple Valley hockey star: Unique family bond, responsibilities shed light on choices

Alan’s Birthday Party

From Me to You — Sibling to Sibling: Talking about the Big Taboo

Conversation: A Simple Yes/No Will Do

Administration on Developmental Disabilities: Envisioning the Future

Ashton Kutcher’s twin brother, Michael, who has CP, lobbies Congress for funding for cerebral palsy

Take one and Pass Along. The Arc’s F.I.N.D.S.: Family and Individual Needs for Disability Supports

My Story by Marvin Moss

Monica and David HBO TV Premiere

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