What do physicians think about intellectual disability?
Are you a sibling of children or adults with intellectual disability, living in the USA, and you know about the medical experiences of your brothers and sisters with intellectual disability?
Please consider participating in this study conducted by researchers at the University of Perugia (Italy) and The Ohio State University Nisonger Center, telling your impressions about physicians’ behaviors and beliefs on adults with intellectual disability.
Click on the following link to learn more about this study or participate (filling out an anonymous, about 40 minutes long, survey): https://forms.gle/ZHjQmBN4BoUKMyGk9
Thank you for considering this study, whose results may contribute to enhance the quality of healthcare for adults with intellectual disability!
Adults with intellectual disability show a larger number of health problems compared to the general population. However, disparities in healthcare access for adults with intellectual disability are reported. Physicians’ attitudes toward and beliefs about adults with intellectual disability are important to promote healthcare access for this population.
The purpose of this study is to explore the perspective of healthcare providers, disability professionals, and family members of children or adults with intellectual disability about the healthcare experience of adults with intellectual disability. Participants will be asked about their impressions about physicians, and about physicians’ beliefs on intellectual disability.
(a) inclusionary/exclusionary criteria for the sample:
• Adults, 18 years or older,
• Living in the United States,
• Who are disability professionals (e.g., direct support professionals, case managers or other support professionals) OR healthcare providers (e.g., physicians, dentists, nurses, psychologists) working in the field of intellectual disability, OR
• Who are family members (e.g. parents, siblings) of children or adults with intellectual disability (only one person per family can participate in this study) and know about their medical experiences.
(b) instructions on how someone can participate in the study:
Participants will be asked to fill out an anonymous online survey, which can be reached by clicking on the following link (https://forms.gle/ZHjQmBN4BoUKMyGk9) or scanning the QR code (see the attached recruitment flyer).
Participants will be asked to declare to be 18 years or older, to have read and understood the provided information in the study presentation, and to agree to participate voluntarily in the study. Then, they will be asked to read 74 statements regarding adults with intellectual disability and to answer the same two questions for each statement: (1) “How many physicians do you think would agree with this statement?”, and (2) “If physicians agreed (or “disagreed” for some statements) with this statement, how damaging would it be for the healthcare of adult patients with ID?”. Finally, participants will be asked to answer a series of questions concerning demographics (gender, age, residence, race, ethnicity, education, job) and their experience with intellectual disability and children or adults with intellectual disability.
(c) amount of time needed to participate:
This online survey requires about 40 minutes to complete.
(d) compensation (if any) for the participant:
There is no form of compensation for participants to take part in this study (i.e. they will not be paid to participate).
(e) the potential for any harmful effects (including psychological effects):
Taking part in this study, participants will not incur any cost or harmful effect.
If you have any questions or comments about the study, please contact a member of the research team:
alice.bacherini@studenti.unipg.it
Susan.Havercamp@osumc.edu
giulia.balboni@unipg.it
See more in our Sibling Research Corner.
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