New Sib Podcast Survey

August 7, 2025

Sheena Brevig is partnering with the Sibling Leadership Network (SLN) to launch a new podcast dedicated to exploring the unique experiences of being a “Sib” — a sibling of a person with a disability. (See the next page for the full definition.) As a Sib herself, Sheena has spent years navigating her own mental and…

Vanderbilt University Research Opportunity

July 8, 2025

Sharing lived experiences can help researchers better understand the realities siblings and families face—paving the way for more informed and compassionate support. The study, Exploring Distressing Behavior Among Autistic Adults and Its Impact on Siblings and Other Family Members, is currently seeking participants. Who can participate: – Autistic adults (18+) with distressing behaviors – Their…

George Mason University Research Opportunity

June 29, 2025

This study, “Painting the Future Together,” is a project at George Mason University aiming to understand how Asian families support their family members with intellectual and developmental disabilities (IDD), including intellectual disabilities, autism, or cerebral palsy, during significant life transitions. These transitions encompass moving from early intervention to preschool special education, entering elementary school, or graduating…

University of Maryland Baltimore County Research Opportunity

April 15, 2025

Do you provide support or care for a sibling with an intellectual or developmental disability? Do you also provide support or care to an aging parental figure? Are you willing to share your experiences with researchers? Researchers at the University of Maryland Baltimore County (UMBC) are looking to learn more about the challenges faced by…

Ethical Considerations and Policy Recommendations Impacting Sibling Caregivers

August 20, 2024

The Sibling Leadership Network: Ethical Considerations and Policy Recommendations Impacting Sibling Caregivers The Sibling Leadership Network (SLN) is a non-profit organization dedicated to supporting siblings of individuals with disabilities. Siblings play an important role as caregivers in the disability community, but also deserve to be recognized as individuals with their owns needs, identities, and roles.…

Research Opportunity for Adults with Siblings Diagnosed with Autism or Down Syndrome

July 15, 2024

Adults with siblings diagnosed with autism or Down syndrome are invited to participate in a study exploring how having a neurodiverse sibling impacts adults’ overall wellbeing, relationships, and decision making. Participation requires registering for Prolific, an online research platform, using the link below. After registering, participants will be invited to complete a brief online survey…

Research Opportunity for Parents and Siblings of Autistic Adults

March 26, 2024

Parents and siblings of autistic adults are invited to participate in a study about long-term care planning. Participation includes completing an online survey and a remote interview (via Zoom or phone). Participants must be: parents or siblings of an adult with autism spectrum disorder, ages 18 or older, speak English fluently, and have access to…

Research Opportunity for Parents and Siblings of Autistic Adults

February 22, 2024

Research Participants Needed

January 31, 2024

Do you have a sibling with an intellectual and developmental disability (IDD)? Are you a caregiver for your sibling with IDD? Are you 18 years or older? If you answered yes, consider participating in a research study that would help researchers to better understand sibling caregivers’ views and experiences around well-being and support. As a…

Research Participants Needed

December 4, 2023

New Sib Podcast Survey

Vanderbilt University Research Opportunity

George Mason University Research Opportunity

University of Maryland Baltimore County Research Opportunity

Ethical Considerations and Policy Recommendations Impacting Sibling Caregivers

Research Opportunity for Adults with Siblings Diagnosed with Autism or Down Syndrome

Research Opportunity for Parents and Siblings of Autistic Adults

Research Opportunity for Parents and Siblings of Autistic Adults

Research Participants Needed

Research Participants Needed

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