Blog: Real Lives Bill Offers Options for People with Disabilities

April 16, 2012

By John Kramer This year, we’ve heard a lot about shrinking budgets and tightening belts. As the brother of two young men with developmental disabilities, I worry that these budget cuts will diminish my family’s options and my brothers’ opportunities. Like many siblings of people with disabilities, I’ve witnessed my parents fighting tooth and nail to…

Family leave act doesn’t cover sibling care

June 20, 2011

Excerpt- “Although the Family and Medical Leave Act provides job-protected time off to care for certain seriously ill family members, it does not expressly provide the right to leave to care for a sibling. However, it is not out of the question that the law could apply to your situation. I consulted attorney Jeffrey A.…

Commending The Arc of the U.S. for Considering Sibling Needs

June 16, 2011

As a proud partner of The Arc of the United States, the national Sibling Leadership Network (SLN) commends The Arc for its recent survey and report which raise awareness of the needs of aging individuals with intellectual and developmental disabilities (IDD) and their caregivers. We are especially appreciative of The Arc’s recognition of the increasingly…

Action Alert: FY 2012 House Budget Resolution

April 12, 2011

If this gets passed, it will have big time ramifications for our brothers and sisters with disabilities and, by extension, us. Please consider calling. -John TO: AUCD Network FROM: Kim Musheno Below and attached is an action alert that will be sent out by all CCD organizations to their networks regarding the very alarming and…

Eva Longoria tells lawmakers proposed cuts would bring “shame on Texas”

March 2, 2011

Great to see this! Let’s hope we hear from more siblings about the effects of the budget cuts. -J AUSTIN, Texas (AP) — Actress Eva Longoria lobbied lawmakers and spoke at a rally on behalf of the mentally disabled on Tuesday. She said if the Legislature passed proposed cuts in services it would bring “shame…

R-Word – Spread the Word to End the Word

March 2, 2011

FYI- this is an issue near and dear to many of our siblings with disabilities. Take a minute and check it out! -John “Everyone has a gift and the world would be better off if we recognized it.” – Timothy Shriver, Chairman and CEO of Special Olympics. The effects of the R-word on people with…

Immediate Action Needed!!

March 1, 2011

TO: AUCD Network FROM: Kim Musheno As you know the Administration on Developmental Disabilities (ADD) is collecting information from people with disabilities, families and professionals about how the Administration should support people with intellectual and other developmental disabilities. Besides holding in-person forums across the country (Envisioning the Future Forums), ADD has been collecting recommendations online.…

HHS NEWS: Affordable Care Act Supports States in Strengthening Community Living

February 23, 2011

FOR IMMEDIATE RELEASE: Tuesday, February 22, 2011 Contact: HHS Press Office: (202) 690-6343 Nationally, $4.3 Billion in New Funds Announced to Help Establish and Expand Community-based Alternatives to Institutional Long Term Care States will see significant new federal support in their efforts to help move Medicaid beneficiaries out of institutions and into their own homes or…

Testimony Submitted to Administration on Developmental Disabilities – Don Meyer

February 18, 2011

Below is the online testimony I gave to the Administration on Developmental Disabilities. I think YOU should add your testimony too. Why? With looming budget cuts, services for adults with disabilities have never been threatened as they are now. And when these supports go, it could have a HUGE impact on the lives of adult…

Sibling Leadership Network Testimony for Administration on Developmental Disabilities

January 21, 2011

On behalf of the national Sibling Leadership Network (SLN), I wish to share with ADD some information about the growing importance of siblings of people with disabilities. Siblings often play a key role in providing natural supports for people with disabilities throughout their life. Yet, navigating the disability service system and getting support for themselves…

Blog: Real Lives Bill Offers Options for People with Disabilities

Family leave act doesn’t cover sibling care

Commending The Arc of the U.S. for Considering Sibling Needs

Action Alert: FY 2012 House Budget Resolution

Eva Longoria tells lawmakers proposed cuts would bring “shame on Texas”

R-Word – Spread the Word to End the Word

Immediate Action Needed!!

HHS NEWS: Affordable Care Act Supports States in Strengthening Community Living

Testimony Submitted to Administration on Developmental Disabilities – Don Meyer

Sibling Leadership Network Testimony for Administration on Developmental Disabilities

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