Karen Edwards, a colleague at the Westchester Institute for Human
Development's LEND (Leadership Education in Neurodevelopmental and Related
Disabilities) program, has asked me to forward this announcement to adult
sibs and parents. The Westchester Institute for Human Development is a
University Center for Excellence in Developmental Disabilities. You can
learn more about the Institute at http://www.wihd.org/index.html
I have met Karen and have been impressed with her commitment to sibs and
their concerns. Please consider participating and sharing the following
announcement with other sibs and parents you may know!
Don
Are you a sibling or parent of an adult (18 years or older) with a
developmental disability? If so, we invite you to complete a 10-15 minute
anonymous survey. We are interested in learning what, if anything, you would
like to know about genetic testing for individuals with a developmental
disability. The results of our survey will help guide health care
professionals in discussing genetics issues with families like your own.
Faculty, trainees, and families associated with the Leadership Education in
Neurodevelopmental and related Disabilities (LEND) Training Program at
Westchester Institute for Human Development and the School of Public Health
at New York Medical College created this survey. New York Medical College's
Office of Research Administration reviewed and approved it.
If you are interested, please complete the online survey at:
For siblings: <https://www.surveymonkey.com/s.asp?u=386531821871>
https://www.surveymonkey.com/s.asp?u=386531821871
For parents: <https://www.surveymonkey.com/s.asp?u=974313231719>
https://www.surveymonkey.com/s.asp?u=974313231719
Thank you.
Karen Edwards MD MPH and Patricia Patrick MPH
LEND Research Team Leaders
Westchester Institute for Human Development
Valhalla NY 10579
Karen Edwards MD MPH
LEND Program Director, WIHD
Cedarwood Hall Room 332
914-493-8175
Associate Dean for Primary Care
Office of Undergraduate Medical Education
Munger Suite 600
New York Medical College
Valhalla NY 10595
914-594-4609