The Impact of the COVID-19 Pandemic on the Quality of Life of People with IDD

May 31, 2021

Check out this interesting study by the Council on Quality and Leadership: The Impact of the COVID-19 Pandemic on the Quality of Life of People with IDD “People with intellectual and developmental disabilities (IDD) are not only at greater risk for contracting and dying of COVID-19, but also saw their lives significantly disrupted during the…

Research and Implications for Siblings of Individuals with Disabilities Across the Globe

May 21, 2021

Please join us for this pre-conference session on June 18th as part of the 2021 8th National Sibling Leadership Network Conference! Don’t miss out—Register by June 4th! Register on our Conference main page! 9amPT/10am MT/11am CT/12pm ET (Choose Session A or B) Research and Implications for Siblings of Individuals with Disabilities Across the Globe In this session,…

The The Sibling Project Survey

May 12, 2021

The Sibling Project is a research initiative led by a team of investigators based at the Telethon Kids Institute. Check out their survey to help improve the way mental health support and holistic care is provided to siblings and their families. “Siblings are important to each other because they share special bonds, support, joys, unique…

Supporting Siblings During COVID-19 Pandemic Webinar

April 9, 2021

Check out this free webinar that is being jointly hosted by AAIDD and the Sibling Leadership Network! In this webinar, we describe the findings of two studies about experiences of siblings of individuals with disabilities during COVID-19 pandemic, and a relevant future planning intervention program. Presenters: Chung Eun Lee, Ph.D., SLN Chair of Research Committee,…

Leave for Siblings: A Call for Participants

March 13, 2021

Calling all siblings! Have you ever experienced any difficulties requesting leave from work to help support your brother or sister? What are your perceptions of the current Family and Medical Leave Act (FMLA)? Currently, siblings are not explicitly covered under the FMLA but may be eligible to take job-protected unpaid leave under certain circumstances. The…

Under Pressure: Support for Siblings of Individuals with ASD

February 27, 2021

Alison Kolber-Jamieson, Ed.S tells Autism Spectrum News of some of the unique pressures Sibs of individuals ASD may experience in Under Pressure: Support for Siblings of Individuals with ASD. “Lovell and Wetherell (2016) examined the psychophysiological impact of children with ASD on siblings. Their results indicated higher levels of depression symptoms in children who had…

Research Participants Needed: What Do Physicians Think About Intellectual Disability?

February 17, 2021

What do physicians think about intellectual disability? Are you a sibling of children or adults with intellectual disability, living in the USA, and you know about the medical experiences of your brothers and sisters with intellectual disability? Please consider participating in this study conducted by researchers at the University of Perugia (Italy) and The Ohio…

Impact Feature Issue on Self-Advocacy for People with Intellectual, Developmental and Other Disabilities

January 13, 2021

If you haven’t seen it yet, make sure to check out all of the incredible stories in the new Impact feature issue on self-advocacy for people with intellectual, developmental and other disabilities! See the full issue HERE and share with your siblings! Find this and more on out Self-Advocacy Resources page.

New Sibs Research Call for Participants

December 9, 2020

Siblings of Individuals with Developmental Disabilities Are you a siblings, at least 18 years old and living in North America? We are in search of participants for a research study on the long-term effects of growing up with a sibling who has a developmental disability. Take part in our study and contribute to a relatively…

Welcome to Our New Co-Chairs!

December 4, 2020

We would like to give a warm welcome to our newest Co-Chairs! This year we are welcoming Nina Bihani as our Co-Chair of Policy and Advocacy, Chung eun Lee as our newest Research Co-Chair and Kristin Lanari as our Co-Chair of Chapter Development. Please read more about them below or on our ABOUT US page.…

The Impact of the COVID-19 Pandemic on the Quality of Life of People with IDD

Research and Implications for Siblings of Individuals with Disabilities Across the Globe

The The Sibling Project Survey

Supporting Siblings During COVID-19 Pandemic Webinar

Leave for Siblings: A Call for Participants

Under Pressure: Support for Siblings of Individuals with ASD

Research Participants Needed: What Do Physicians Think About Intellectual Disability?

Impact Feature Issue on Self-Advocacy for People with Intellectual, Developmental and Other Disabilities

New Sibs Research Call for Participants

Welcome to Our New Co-Chairs!

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