Sibling Training for Future Planning (Click here for the flyer.) The University of Illinois at Urbana-Champaign is offering a training to siblings of adults with disabilities. Siblings who complete this training will: Participate in workshops to facilitate future planning for their brothers and sisters with disabilities. Develop a letter of intent. Share their experiences with…

Please see the below research participation opportunity: “We need your help recruiting workers with disabilities and workers who provide support to a friend or family member with a disability in California, New Jersey, New York, and North Carolina for remote, one-on-one interviews either by phone, web conference, or email. Columbia University and the Arc are…

An article in BLOOM highlights recent research conducted by Canada’s Sibling Collaborative. According to the research, “concern about the mental health of a brother or sister with a developmental disability was the most pressing issue for over half of 360 Canadian siblings.” To learn more about the survey findings, click here to read BLOOMS’s interview…

Self-Determination Inventory: Adult Report Survey Link: https://www.surveymonkey.com/r/a_report The Kansas University Center on Developmental Disabilities is looking for adults ages 18 and older with any disabilities (e.g., learning disabilities, intellectual disability, mental health issues, physical disabilities) to take the Self-Determination Inventory: Adult Report (SDI:AR). The SDI:AR has 21 items that ask about how you make choices and decision about goals,…

Do you have a young adult brother or sister with I/DD and mental health challenges? A partnership of self-advocates, along with SABE, The Arc of the US, and Boston University are working on a project focused on people with I/DD who also identify as having a mental health challenge. We want to hear directly from young adults…

Dr. Yona Lunsky, a sibling advocate, shares information about the release of “Understanding the Sibling Experience,” a report from The Sibling Collaborative, a Canadian group for siblings of people with disabilities. The report, developed by Helen Ries, Eric Goll, and Becky Rossi, shares recommendations which focus on understanding sibling needs better, creating opportunities to bring them together, giving them…

A recent article shares findings from a study that “fewer than half of parents of children with intellectual and developmental disabilities make long-term plans about who will take over their child’s care” in the instance the parent no longer can provide care. The study’s lead author, Meghan Burke, is SLN’s Research Chair and professor of special education at…

A researcher is conducting a survey of families of adults with disabilities to explore the factors associated with different types of residential placements and respite care services for adults with disabilities. The survey will take less than 30 minutes to complete. The survey is anonymous and voluntary and the responses are confidential. Your responses will…

Question: How is occupational choice impacted for siblings of individuals with disabilities? Description: My name is April Sawyer and I am an Occupational Therapy student at UNC. Occupational therapy assists with identifying and addressing the barriers our clients face when participating in their activities of daily living (individual, contextual, and environmental). For example, these barriers…

by Ariella Meltzer Often siblings of people with disabilities experience a range of life changes during young adulthood – such as making new relationships, learning to drive, moving out of home, finishing school and starting work – that they see their brothers and sisters with disabilities have more difficulty reaching or that they believe their…